Clinical Trials for Patients with Urea Cycle Disorders

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Participating Centers

 

 

Complete safety information for BUPHENYL®

 

 

 

Cities with Participating Centers:

Participating HPN-100-012 Sites:

1.      Portland OR: Oregon Health & Science University. Dr. Cary Harding-Contact Annie Behrend (503) 494-5313

2.      Stanford CA: Stanford University. Dr. William Berquist-Contact Jennifer Perry (650) 725-5961

3.      Los Angeles CA: UCLA. Drs. Derek Wong/Stephen Cederbaum-Contact Naghmeh Dorrani (310) 825-8084

4.      Houston TX: Baylor College of Medicine. Dr. Brendan Lee-Contact Mary Mullins (832) 822-4263

5.      Minneapolis MN: University of Minnesota. Dr. Susan Berry-Contact Sara Elsbecker (612) 626-5275

6.      Portland ME: Maine Medical Center. Dr. Wendy Smith-Contact Susan Mortenson, RN (207) 396-8078

7.      New York NY: Mount Sinai School of Medicine. Dr. George Diaz-Contact Nina Schrager (212) 241-6805

8.      Washington DC: Children’s National Medical Center. Dr. Uta Lichter-Contact Kara Simpson (202) 476-6216 

 

Participating HPN-100-006/007/011 Sites:

1.      Portland OR: Oregon Health & Science University. Dr. Cary Harding-Contact Annie Behrend (503) 494-5313

2.      Stanford CA: Stanford University. Dr. William Berquist-Contact Jennifer Perry (650) 725-5961

3.      Long Beach CA: Long Beach Memorial Medical Center. Dr. James Bartley-Contact Marielou Keuth (562) 933-5607

4.      Salt Lake City UT: University of Utah. Dr. Nicola Longo-Contact Carrie Bailey (801) 587-3605

5.      Aurora CO: Denver Children's Hospital. Dr. Renata Gallagher-Contact Susanna Burr, BS, CCRC, phone: (720) 777-5642

6.      Houston TX: Baylor College of Medicine. Dr. Brendan Lee-Contact Mary Mullins (832) 822-4263

7.      Minneapolis MN: University of Minnesota. Dr. Susan Berry-Contact Teri Carlson (612) 625-0673

8.      Milwaukee WI: Milwaukee Regional Medical Center. Dr. William Rhead-Contact Jeff Crawford (414) 266-7254

9.      Cleveland OH: Case Western Reserve. Dr. Shawn McCandless-Contact Christine Heggie (216) 844-7124

10.  Columbus OH: Nationwide Children's Hospital, Columbus OH.  Dr. Dennis Bartholomew-Contact Kimberly Regis (614) 722-3565

11.  Gainesville FL: University of Florida. Dr. Robert Zori-Contact Christel Gross (352) 265-0680

12.  Pittsburgh PA: University of Pittsburgh. Dr. Gerard Vockley Contact Stephanie DeWard, RN (412) 692-7530

13.  Portland ME: Maine Medical Center. Dr. Wendy Smith-Contact Susan Mortenson, RN (207) 396-8078

14.  New York NY: Mount Sinai School of Medicine. Dr. George Diaz-Contact Nina Schrager (212) 241-6805

15.  Washington DC: Children’s National Medical Center. Dr. Uta Lichter-Contact Kara Simpson (202) 476-6216 

16.  Toronto Canada: Hospital for Sick Children. Dr. Annette Feigenbaum-Contact Emily Bailey (416) 813-7654 ext 2646

 

Participating HPN-100-005/011 Sites:

17.  Seattle WA: Seattle Children’s Hospital. Dr. Lawrence Merritt-Contact Linnea Brody (206) 987-3694

18.  Los Angeles CA: UCLA. Drs. Derek Wong/Stephen Cederbaum-Contact Naghmeh Dorrani (310) 825-8084

 

Travel to study sites

Hyperion will support the costs of travel and lodging for study participants in the studies: HPN-100-005, HPN-100-007, and HPN-100-012.

For the most up-to-date list and more information about these studies please visit the following pages on www.clinicaltrials.gov website

Pediatric study (HPN-100-005)

Adult study (HPN-100-006)

Long term adult safety study (HPN-100-007)

Long Term Use of HPN-100 (HPN-100-011)

Study in Pediatric Patients (HPN-100-012)

 

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