Clinical Trials for Patients with Urea Cycle Disorders

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About HPN-100

About UCD

Who should volunteer?

About the Studies

Participating Centers

 

Complete safety information for BUPHENYL®

Who Should Volunteer?

Research physicians and companies regularly test new drugs that they believe might help improve healthcare. Choosing to participate in a clinical trial is an important personal decision you should discuss with your family and medical team.  Below are some questions you may want to ask your doctor:

  • Why is this trial important to me? What is it trying to prove?
  • Who is sponsoring the trial?
  • What are the potential risks of my participating in this trial?
  • What are the potential benefits and how do those potential benefits compare to other treatment options?
  • Am I eligible to participate in this trial?
  • What happens if the experimental treatment doesn’t work?
  • What are the trial's tests and treatments?
  • Will I be able to see my own doctor? Who will be in charge of my care?
  • How often will I need to visit a physician's office?
  • Will I be hospitalized? If so, how often and for how long?
  • How long will the trial last?
  • How will the trial and its possible side effects affect my daily life? Are there treatments to help alleviate side effects?
  • What support will be available for me and my caregivers during the trial? Can I talk to other people in the trial?
  • What are my out-of-pocket costs and responsibilities?
  • Will my insurance company, Medicaid, or managed care plan cover these costs? Who will help me answer this question?
  • What is the long-term follow-up care? Who is providing this care?
  • Who will review the information collected during the trial? How will my privacy be protected?

BUPHENYL® is a registered trademark of Ucyclyd Pharma, Inc.